MS Stops My Time

I mentioned somewhere on this blog either in a recent posting or a comment (can’t remember) that I felt like time has stopped for me because of MS and that I felt like I have to watch time for everyone else move on without me. My illness is a purgatory preventing me from progressing in life, preventing me from moving forward, moving closer to success

Wrong.

I realize now that thought MS may be a huge obstacle in my life it is still merely an obstacle and all obstacles can be worked around, some are harder then others, but nonetheless, they can all be worked around and so I simply have to work a little harder for my goals in life. All I need is a positive attitude! Well, that and a pharmacy full of medication, but either way, positive attitude, it’s important!

So I guess all I am saying is, my stubbornness has made a new goal, I will be successful in life, I will make this next year a successful one, I will not let time waste away around me, I will move forward!

5 Responses to MS Stops My Time

  1. Soph says:

    You're absolutely right. Your life is NOT OVER (though I know it sometimes feels like it). Just don't overdo it, okay?^^

    "and a pharmacy full of medication" made me grin – I'm in the middle of reading up on the different kinds of medication I can choose from and it all looks terribly complicated.

    I hope you have a brilliant and reasonably healthy 2011. 🙂

  2. Matt Allen G says:

    Lol research is KEY… But yes, I hope we ALL have a healthy 2011 !!!!!!!!!!!!!!!!!!!!!!!!!!

  3. dukedraven says:

    Stay strong and positive and you'll make it. You can overcome all obstacles in your path. Peace always

  4. alexmom says:

    Matt,

    I just found your blog looking for a link to send to some info on Cellcept to a newly diagnosed lupus acquaintance. I admire your honesty and will recommend your blog to others. Although I have lupus and not MS, your journey is familiar-especially the part about Solu-Medrol and Cellcept. Both drugs I have taken for about 6 years (prednisone at varying oral dosage and bolus with flares, cellcept 3000 daily since 2004) and have credited with pulling me back from the abyss and yet I curse both of their names every chance I get 🙂 I also identify with your comments about the costs-when I started cellcept it was $2000 a month, now much less…I was fortunate enough to be "sick enough" to qualify for a clinical trial for a new lupus drug that had a 3 year trial of about 2000 people internationally, and lucky that my first lab results showing kidney involvement did not appear until after I had been in the trial about 3 months. If the labs had been in before my acceptance, they would have denied my participation. The drug was life changing for me. I'm not 100% but I am a solid 75% of where I was before the nightmare began. I am thrilled to have that. The drug was just approved last month by the FDA and so beginning in February 2011 the trial will officially end. Then I will have to fight with my insurance company to see if I can still afford it. I hope you will keep writing and sharing your journey. For me, writing has always been a way to get some of the emotions out of my body. The fear, sadness, anger, frustration, especially the frustration at not being able to will my body to do what I want it to do…all of those things seem like toxins to me that make it harder for my body to cope with the disease. I have to admit that I don't always make the best choice in how I express those emotions, and I too, like you, have a tendency to want to withdraw and isolate, and hold all of that "stuff" inside. Whether you decide to see a therapist or join a group of folks who are dealing with chronic illness, or a group of people who love to write and express their feelings, you have a gift and are touching the lives of others. Take good care of you. Alexmom

  5. Matt Allen G says:

    Thanks for the message! I have to ask, what has you experience will cellcept been like so far? I have not researched the drug enough yet and I have not even started taking it (well today will be my first day). I know it can take months to take effect but do you find yourself getting sick more often? That's what I am kind of worried about…

    But man, I can't complain about money issues compared to those numbers… I am assuming you have no health insurance? Man, if I didnt have health insurance I would be screwed….. Guess I should be more then grateful!

    But yes, I find that writing is my best self therapy so far especially knowing there are people out there reading. I can only hope that my writing will help someone in some way shape or form no matter how little help it may be.

    Keep in touch and I wish you the best of luck!

    -MATT

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