Yesterday was exactly 1 year from the day I did my first Lemtrada infusion. I also had an appointment to see my neurologist at his new clinic to try to actually get on the schedule in their infusion center. We had a hell of a time trying to even find the place because the appointment scheduler gave me the address to the wrong office! That office told me that on Wednesdays he is in the “San Bernardino office” so I pulled up their website on my phone to look at the addresses for all their locations. There was only one other location and it was on San Bernardino street so it must be that one right? Nope. We showed up and after walking around and not finding what I was looking for I called them back to try to figure out what was going on. Apparently, the location he was at is not on the website so I took down the actual address and we were off to another location. This time, we pull up and it’s a pharmacy that shares a building with what looked like a physical therapy clinic so once again I call them back. Finally, they tell me that I am in the right place; I just needed to check in at the physical therapy looking place. Weird but it was definitely a doctor’s office so I am not sure if they just bought the building or what. One thing was for sure, this clinic was not sponsored by “big pharma” and when I brought it up that was one of the main reasons my doctor was happy to have moved here; no crazy red tape and they actually run a foundation that pays for any healthcare (be it prescription cost or an MRI) a patient might need so now all his MS patients “can get what they need instead of what they can just afford”.
Last week I stopped my “exercise routine” because I was not sure if I was getting sick or not. Guess it was a false alarm (knock on wood). So yesterday I got myself back on track for the week but I kicked it up a notch, a small notch but a notch. First, instead of using the recumbent bike I used the elliptical. On the recumbent bike, I noticed that my legs would fatigue before I really got my cardio going; it didn’t matter how long I was on it, how fast I pedaled or what level of resistance I was on. So even though I hate the elliptical I thought it would be much better for my cardio because you are pretty much moving your entire body rather than just your legs and wow, I am so out of shape!
Well, I have not had anything like this in years! This is going to be very short, mostly for my own documentation purposes and to try some new blogging tactics out. Ugh, pain! Well not too bad but bad enough to catch my attention.
I know a lot of you have already noticed this and signed up but I never really mentioned it. When I got a lot of work done on my blog I added a plugin called “BuddyPress”. When you are anywhere on my blog, scroll all the way down to the bottom and you will see a small section labeled “BuddyPress”. If you sign up you will be part of a mini social media, facebook-like forum. A lot of people have signed up but from what I can tell it does not show a list of members. It was sort of confusing at first but after you register, go back to the bottom of my blog and click on your name/profile picture (in the BuddyPress box) to bring BuddyPress up. There you can post “what’s on your mind” or comment on other people’s statuses. You can also set up and edit your profile. So if you haven’t already, register and then try posting or joining a conversation! Hopefully this will work out well enough that people can have conversations about MS without all their family and friends seeing what they are talking about, I get that not everyone has fully disclosed their MS.