What is Multiple Sclerosis?

What is Multiple Sclerosis?

Multiple Sclerosis (MS) is believed to be an autoimmune disease in which the body’s own immune system attacks the protective cells along the nerve in the central nervous system. More »

What is a Lumbar Puncture?

What is a Lumbar Puncture?

Do you have a lumbar puncture (spinal tap) comping up? Click here to learn about what it is, how it’s done and what you can expect. More »

MS Nick Names; My Dark Passenger

MS Nick Names; My Dark Passenger

I have never called my MS anything, it just wasn’t me, I always felt a lot of these names were too… cute? They didn’t do the evil known as Multiple Sclerosis any justice I suppose. More »

What is Lemtrada?

What is Lemtrada?

Lemtrada is given intravenously over 5 consecutive days and then 3 consecutive days 1 year later. More »

Shocking Sensation! What is Lhermitte\\\\\\\'s Sign?

Shocking Sensation! What is Lhermitte\\\\\\\'s Sign?

More than two thirds of those with Multiple Sclerosis experience what is known as “Lhermitte’s Sign” or “The Barber’s Chair Symptom”. More »

How is Multiple Sclerosis Diagnosed?

How is Multiple Sclerosis Diagnosed?

Here I’ll explain what you need to do to know if you have MS or not but more importantly is why you need to do this. More »

 

How MS Can Cause More Than Symptoms in a Person’s Life

OK, I think it is time for some honesty. For the last two and a half years or so my life with Multiple Sclerosis has taken an interesting turn. I don’t just mean medically, I mean in every aspect of my life because MS affects, well, everything. It’s been overwhelming, more so than usual I mean. My social life has seemingly collapsed and like many others with MS, my financial life is a burning pile of disappointment. The bills just keep coming and they pile up faster than I can make money. I have so many medical collection notices that I don’t bother checking the mail anymore. 9/10 times all I will get is a notice that someone wants money from me. Even worse, my MS has, from the very beginning, slowly chipped away at my independence. Sometimes I can’t help but feel like I can’t do anything for myself anymore! But that is not necessarily true, I have been way worse off in the past and I have seen so many people in much worse positions than I but, that being said, I can still do a lot less than I could before. So all of this has been hard on me mentally and emotionally which I think is partially why I have been so inactive here on my blog and in the MS community (I know many will disagree). Lately blogging about my life with MS seems to remind me of all these things and I think I have been avoiding it to avoid dealing with the reality of my situation.

Getting Back on Track

 

Depression, Dietary Changes, and Fitness goal

So yes, once again I fell off the radar. For the first time in many years I felt my clinical depression come back and just destroy me. Once I realized that this was what was happening, so much of what I have been complaining about recently started to make sense and what sucks is that I did this to myself. You see, when I was about 18 I was actually diagnosed with clinical depression. I have pretty much been on antidepressants ever since and I have tried so many until I found the one that worked for me which was/is Zoloft. So I feel really dumb because this is the stereotypical bi-polar disorder mentality; I feel bad so I need medication but after a while I feel good so I must not need the medication, not like I feel bad anymore right? I stop the medication and then I feel bad again. So a few months ago I was feeling good. I was no longer waking up feeling depressed for no reason so I decided to stop my Zoloft. I wanted to see how it felt to not be taking a handful of pills every morning that I might not even need. All I was taking was an anti-viral called Acyclovir which I have to take for so long after my last Lemtrada infusion to help make sure I do not get any sort of herpes-related virus.

First Zinbryta Injection Yesterday

Yesterday I finally had my first injection of Zinbryta. It took months to get it approved and sent to me but it finally happened. So that was a little relieving. But then I was nervous it was going to make me feel like crap much like Rebif did. After talking to a lot of people in support groups on Facebook my worries were put at ease a bit. It seemed like the most common issue was dry skin or an injection site reaction. Well, I injected around 8am yesterday and over 24 hours later no problems at all. No dry skin, no injection site reaction, nothing. So I am happy it went so smoothly.