What is Multiple Sclerosis?

What is Multiple Sclerosis?

Multiple Sclerosis (MS) is believed to be an autoimmune disease in which the body’s own immune system attacks the protective cells along the nerve in the central nervous system. More »

Read More of Me on MultipleSclerosis.net

Read More of Me on MultipleSclerosis.net

Click here to read more of my writing on MultipleSclerosis.net where I am a contributing writer More »

Join iConquerMS and Be Part of the Cure

Join iConquerMS and Be Part of the Cure

Joining iConquerMS is free and allows you to participate in shaping Multiple Sclerosis research from the comfort of your own home. Surveys are typically pretty quick and may just allow researchers to identify crucial patterns that could lead to better treatments and ultimately a cure! More »

What is Lemtrada?

What is Lemtrada?

Lemtrada is given intravenously over 5 consecutive days and then 3 consecutive days 1 year later. More »

Shocking Sensation! What is Lhermitte\\\\\\\\\\\\\\\'s Sign?

Shocking Sensation! What is Lhermitte\\\\\\\\\\\\\\\'s Sign?

More than two thirds of those with Multiple Sclerosis experience what is known as “Lhermitte’s Sign” or “The Barber’s Chair Symptom”. More »

How is Multiple Sclerosis Diagnosed?

How is Multiple Sclerosis Diagnosed?

Here I’ll explain what you need to do to know if you have MS or not but more importantly is why you need to do this. More »

 

Steroids; 5 Days of Solu-Medrol Done!

What a 5 days! It felt like forever! Each day, the closer to completion I got, the slower time felt. It didn’t help that a couple of the nurses had a bit of trouble placing the line… several times… resulting in multiple pokes and bubbles of burning Solu-Medrol under my skin. So much fun! I don’t plan on ever going back there again. First of all, it was ran out of a 2 bedroom house converted into a medical building. Lots of businesses do that in Redlands, CA but still, it was kind of weird at first. Then I just don’t have any desire to put my veins through that pin-the-tail-on-the-donkey-game again. Never even had that issue with medical students! But I am done. I was supposed to start a Prednisone taper today but guess what? My doctor never ordered the Prednisone despite my nagging calls! Oh well.

Almost Done with Steroids, Luckily

Solu-medrol has not affected me like this in years. I feel terrible. Especially because of the sleep issues. Night one I fell asleep at 8:00pm but woke up wide awake at 2:00am and just lied there till about 6 or so. I should note that I was mentally fatigued but physically awake which is the opposite of what I usually am. The next night I took a little more to help me fall and STAY asleep; clocked in about 14 hours of sleep! Oh, reminds me of high school haha.

Starting Steroids for Relapse Tomorrow

This relapse is just wiping me out. It’s been a while since I felt like one hit me so hard. I saw my neurologist the other day and he agreed. I start a 5-day course of Solu-medrol (IV steroids) tomorrow and that will be followed by a Prednisone (oral steroid) taper. Before my infusion tomorrow I actually have an MRI to see where things are at… I don’t feel any different than I did right before I did Lemtrada so I am not sure what to expect… not sure what the next step in my treatment will be. All I know is I am once again changing my diet. Once I feel like I am not relapsing I am really going to push the exercise thing. I need to make my health my life, as in, be super pro-active, something I wish I had maintained since first being diagnosed. I just want to feel like I have some sort of control over my life again, my body. I’m sick of being tired and tired of being sick. Well, that is it for today, I am so tired, fatigued, weak, and I just can’t see. I will try to post more details tomorrow if I am up for it but for now I need to keep resting.

How I Have Been (Relapse) What’s Next?

The other day I explained how I had been going through a pretty rough patch. I just focused on my depression in thar post, something I have always (for the most part) kept to myself until recently. Obviously, I have expressed that I was feeling depressed in the past, but to me, that was all situational. This time I was talking about something that is just part of my awesome brain (catch the sarcasm?). Well as I said in that post, I finally seem to have a hold of it (as of now) but what I did not really talk about is how my Multiple Sclerosis has just been out of control, in fact, I would say it’s pretty obvious that I am in the middle of a relapse as I type.