What is Multiple Sclerosis?

What is Multiple Sclerosis?

Multiple Sclerosis (MS) is believed to be an autoimmune disease in which the body’s own immune system attacks the protective cells along the nerve in the central nervous system. More »

What is a Lumbar Puncture?

What is a Lumbar Puncture?

Do you have a lumbar puncture (spinal tap) comping up? Click here to learn about what it is, how it’s done and what you can expect. More »

MS Nick Names; My Dark Passenger

MS Nick Names; My Dark Passenger

I have never called my MS anything, it just wasn’t me, I always felt a lot of these names were too… cute? They didn’t do the evil known as Multiple Sclerosis any justice I suppose. More »

What is Lemtrada?

What is Lemtrada?

Lemtrada is given intravenously over 5 consecutive days and then 3 consecutive days 1 year later. More »

Shocking Sensation! What is Lhermitte\\\'s Sign?

Shocking Sensation! What is Lhermitte\\\'s Sign?

More than two thirds of those with Multiple Sclerosis experience what is known as “Lhermitte’s Sign” or “The Barber’s Chair Symptom”. More »

How is Multiple Sclerosis Diagnosed?

How is Multiple Sclerosis Diagnosed?

Here I’ll explain what you need to do to know if you have MS or not but more importantly is why you need to do this. More »

 

What the Hell is Wrong With My Body?

 

Been Thinking About My Past Before MS

So first of all, the other day I sprained/twisted my wrist. Not sure that there was really an “event” that did it, it was more like a series of events. First, I think I slept on it weird so I started my day off with it kind of hurting. Later I was using a heavy battery-powered drill to put something up in my bathroom when my wrist just “gave out” but I didn’t lose my grip of the drill so my hand just sort of “fell limp” meaning the heavy drill in my hand sort of yanked at my wrist. This is when it really started to hurt but I still didn’t think it was that bad so I did not ice it right away but then I went to see a movie with my Dad and the entire time I was messing with my wrist (it was bugging me) and by the time I got back it was hurting so bad! So I wrapped it up (with one of those stretch band things) and went to bed thinking it would be fine by morning but nope, it hurt even worse. So I started the whole icing thing, used a splint to keep it immobilized and alternated between that and the wrap. It has been a few days and it is not as bad (I can kind of type now) but it still hurts when I move it too much so I am still wearing that splint. Fun…

Stimulants and Weight Loss? Duh!..

So I weighed myself yesterday as I have every few days to monitor my weight (same time and before I eat/drink to make sure it’s just me I am weighing not stuff in my stomach) and I am down another 5 pounds despite eating very particular food, planning my calories and other nutrients… What the heck! I thought I had at least stopped myself from losing weight! So once again I started to stress and worry (thinking about this and my constantly dropping WBC) which was not good to add on top of everything else I am dealing with right now. But I was sitting at my desk where I have all my medication laid out (so I don’t forget to take them) when I realized… whenever I am asked what medication I am on I typically only think about what I keep in my Monday-Sunday pill organizer thing but what about all the other pill bottles on my desk? Most of that is “as-needed” stuff like Temazepam for insomnia or Ritalin (methylphenidate) for fatigue. Ritalin. How did I never think of this? Ritalin is a stimulant. Stimulants cause you to lose weight! One of the main reasons I stopped taking Nuvigil!

Anxiety, Stress and Sleep

I am not sure if I have mentioned this before because sometimes I don’t like admitting stuff like this (even to myself) but for the last 2 years or so I have been going through a bit of an identity crisis, again… MS is continuously changing my life and every time I have a major relapse and I am left living with a “new normal”, I have to learn how to come to terms with the changes MS left me with as well how to adapt to them. Several times in my life with this disease, I have felt lost regarding my identity; who I am and what my roll in this life is. For example, I thought I was going to be a photographer. Photography was my thing. I did some work (like weddings), studied it every day, and even took a class on it. But after MS did some more damage that seemed to have stuck, I slowly lost interest and gave up that idea. All of a sudden I was not “Matt the photographer” so I did not know who I was besides “Matt the guy with MS”. So I focused on writing but with more time and more “permanent disability” it became less enjoyable especially when I was not sure what my “ultimate goal” was. It was really hard to not think “what is the point of this? What difference can I even make?”